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Nov 29, 2009

intentions...

Went to the doctors of Friday and basically I'm just another spectacle, another miracle, an experiment. I just want to be normal. Some people like to read my blog because it makes them feel good or sad but they should feel happy that they have their whole life ahead of them. That every breath they take is a miracle, we're a miracle. So I'm not a spectacle and I'm just Lisa. You get what you get.

The doctors treated my visit as just another check up, I really don't think that they can do anything for me during these check ups except to lighten my wallet. So I'm exhausted by the end of the day with the doctors. The next day Joey had to spend the day giving me fluids and taking care of me so that I could recover from the doctors visit. Thank you Husbande.

The lung test I have to take for the UW transplant program will be very challenging for me because I am so weak. I am not even able to take a deep breath. I have all the intentions to do my best to feel better but by the end of everyday I'm just too tired, especially during the winter. Some think that a lung transplant will be my only option but I just want to be healed of this stupid disease. I'm getting weaker mentally as my body wears down my mind is exhausted. My heart can not pump as fast and that slows me down a lot. That's why I have to rest so much and stay home. I'm always concerned about getting pneumonia, so basically I'm a homebody until flu season is over this March or until I can get used to the weather here. I've gotten a lot of care from my mom, hubande, and my dad who stays home with the dog while my mom helps me.

A miracle is only a miracle if you can't see a way it's going to work, only God can do this through your prayers. 

If you want to get me Christmas gifts, I'm in need Organic clothes, toe socks or at www.rei.com
 or www.amazon.com

1 comment:

Unknown said...

Hobbster, you should be so proud your words have really come back to you. I am so glad you are able to communicate how you are feeling and doing. I am sorry you are so tired. I hope you are finding some good ways to rest and relax. I love you very much! See you soon. Sara